Well, it’s been a relatively quiet several years. But things are changing.
It started last week. I was having some abdominal pain. I thought it was gas or maybe even just a little constipation. But after taking appropriate relief measures but getting no relief and the pain keeping me from sleeping I headed to the ER at about 2:30 AM Thursday morning.
Well, I gave some blood had an x-ray and an adventure with dilaudid they ordered a CT scan, the results of which were disappointing. One of the lymph nodes in my abdomen has grown to about the size of my fist and is starting to cause some pain. I consulted with Houston and I am going to go down for a PET scan a week from Monday.
This is worrying because about 5% of CLL patients will have a complication called Richter’s Transformation where the CLL/SLL mutates into an aggressive lymphoma. That is obviously a very bad thing and with this popping up rather suddenly it is a distinct worry. But by the same token I haven’t had a CT in a year and every check up has been a report of minimal growth which means growth, so it is not necessarily indicative of Richter’s. The PET scan will tell because, if you remember, my cancer was invisible to the last PET scan I had. So if it lights up the PET scan, that will tell the story. I have a bit of a wait to find out.
I’ll have more details of my plans as I get more information. Thanks for continuing to keep up in my cancer adventure.