Well, I just read a column about SLL/CLL the duel designation of the disease is confusion for a lot of people (myself included). There is a new column on CLL Topics that tackles the differences.
I thought I had a pretty good handle on it. And generally I do. But I lost a thought with which I had been consoling myself. The conventional wisdom for CLL is the longer you wait for treatment the better, with indications for treatment being: large nodes, or B symptoms (night sweats, weight loss, etc.) . I consoled myself with the thought that if I had found it earlier, my treatment would have been largely the same.
Now I know different. If I had found this while it was in stage one or stage two, The treatment would have been radiation and it would have been curative an amazingly large number of cases. But now that my bone marrow is involved there is no difference in terms of treatment.
If you are really interested, you can read the article here.
In the meantime, I start Rituxan again tomorrow. Oh, I forgot. I don’t think I’ve mentioned it yet. I am back on the clinical trial. I was thinking that I would pick up where I left off. No go. The months I missed are gone. The trial is still open ended, however. So, I could potentially stay on Revlimid as long I am getting a response. No word on a potential match from MDA. Also no word on what kind of time frame we might be looking at on the transplant.
On the recording project front, I am very close. I have 2 major instruments missing from two songs and several vocal and percussion parts. I had to leave the studio early today, and I’ll lose all day tomorrow because of the Rituxan infusion.
I brought Bethany and Kaitlyn in to sing some parts. I’m obviously doing lot’s of parts myself and that sounds very slick and very studio. It’s a good sound, but I want to have more than one kind of song on the album. Anyway, I’ll have lot’s of different background voices, besides myself.
This album is my love letter to R&B and horn bands. I have some funk, some Memphis style R&B some 50’s flavored grooves, as well as some studio horn band vibes. I can’t promise you’ll like it all, but it is the kind of album I like. Lot’s of different styles, different grooves and different sounds.
I doubt it’ll be what you would call “major label” quality, but it will be a nice little project. I’ll write about it soon. As Chris Taylor came over to record guitar parts, I realized I have been working on this project for a year. It took me that long to figure out the best way to go about it. I’ll write a blog about the journey very soon.
Sunday, January 31, 2010
I've been very busy!
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